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Providing care for a person living with a life-threatening illness requires planning and team effort. Planning ahead and working with others ensures the best possible care and that you as carer are supported to continue in your important role.
This section includes tips on managing day-to-day care, checklists, charts and lists of questions to ask the PCSE team and doctors.

1.6 Practical tips for day-to-day care

It is important to mobilise the people around you for help in caring– don’t be afraid to delegate. This involves asking for help, which some people can find difficult.

Remember:

  • asking for help is not a sign of failure
  • family and friends want to help
  • sometimes people wait to be asked for help

You could also ask people to organise help on your behalf.

Give everyone who has offered to help something specific to do. See the caregiving roster on page 26 – there are plenty of tasks to delegate.

Speak with your PCSE team about extra help or volunteers if you have no one else available.

Organise a family meeting to allow everyone to discuss how they can help. PCSE staff may assist if this is likely to be difficult or involve conflict or misunderstandings.

Circumstances may change. Be prepared for change

The health of the person you care for may change or become more complex. Planning for change is important.
Keep a record of changing symptoms and behaviour. Let your PCSE team know.

Set up a caregiving roster

Here is a list of example tasks to delegate to people who agree or offer to help. If possible, set up a roster with set, regular times for others to help.

What else? List other care needs you need support with.