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1.7 Questions to ask

Knowing ahead of time what questions you would like answered during home visits or appointments means you are less likely to forget to ask them when the time comes. Following are lists of questions to keep in mind.

If you are given answers that you don’t understand, ask for clarification.

Questions you might want to ask of the PCSE team

 

Questions about caring

  • What skills do I need as a carer?
  • Do you think I can care for the person at home?
  • Can I get help if I cannot manage?
  • How can I best support the person I am caring for?
  • How can I assist the PCSE team to talk to the person I care for in a way that respects their personality/culture?
  • Who can I talk to if I am concerned about the care the person is receiving?
  • If I cannot manage to look after the person I care for at home, how can we come to terms with this?

 

Questions about practical support

  • Can you provide equipment to make every-day living easier at home? (Do fees apply?)
  • Are we eligible for disability parking? How do I apply for this?
  • Are there any volunteers available to help me? (e.g. to take me to an appointment or to do the shopping)

 

Questions about finances

  • What costs will there be during the illness (e.g. for any equipment required or medications)?
  • Is there any way we can get medical equipment (e.g. oxygen) or medications at a cheaper price?
  • What financial assistance is available for the person I care for or me (e.g. pensions)?
  • Is there someone I can talk to about financial matters?
  • How can I help get affairs in order and write a will?

 

Questions about nursing

  • What symptoms may occur in the future and what should I do if they arise?
  • Will the pain and other symptoms be controlled in the future?
  • What should I do if the person I care for won’t eat very much?
  • If they eat more will this make them live longer?
  • What are the worst days going to be like?

 

Reproduced with permission from Palliative Care Australia (with minor alterations)

Write down any questions as you think of them.
Keep them in a safe place to take to any appointments or have for home visits.